In The Story Within, authors share powerful experiences of living with genetic disorders. Their stories illustrate the complexities involved in making decisions about genetic diseases: whether to be tested, who to tell, whether to have children, and whether and how to treat children medically, if treatment is available. More broadly, they consider how genetic information shapes the ways we see ourselves, the world, and our actions within it. People affected by genetic disease respond to such choices in varied and personal ways. These writers reflect that breadth of response, yet they share the desire to challenge a restricted sense of what 'health' is or whose life has value. They write hoping to expand conversations about genetics and identityto deepen debate and generate questions. Whether they or their families are affected by Huntingtons disease, Alzheimers disease, cancer, genetic deafness or blindness, schizophrenia, cystic fibrosis, Tay-Sachs, hypertrophic cardiomyopathy, fragile X, or Fanconi anemia, their stories remind us that genetic health is complicated, dynamic, and above all, deeply personal.
In The Story Within, authors share powerful experiences of living with genetic disorders. Their stories illustrate the complexities involved in making decisions about genetic diseases: whether to be tested, who to tell, whether to have children, and whether and how to treat children medically, if treatment is available. More broadly, they consider how genetic information shapes the ways we see ourselves, the world, and our actions within it. People affected by genetic disease respond to such choices in varied and personal ways. These writers reflect that breadth of response, yet they share the desire to challenge a restricted sense of what 'health' is or whose life has value. They write hoping to expand conversations about genetics and identityto deepen debate and generate questions. Whether they or their families are affected by Huntingtons disease, Alzheimers disease, cancer, genetic deafness or blindness, schizophrenia, cystic fibrosis, Tay-Sachs, hypertrophic cardiomyopathy, fragile X, or Fanconi anemia, their stories remind us that genetic health is complicated, dynamic, and above all, deeply personal.
This work has been selected by scholars as being culturally important, and is part of the knowledge base of civilization as we know it. This work was reproduced from the original artifact, and...
The tradition of a story framed by another story traces back before recorded history. The snake has been eating its own tail for at least 7000 years. This anthology is radically new but depends on...
Frame narratives--stories within stories--are featured in nearly every canonical Gothic novel. Sometimes dismissed as a shopworn convention of the genre, frame narratives in fact function as a...
A CREATIVELY CRAFTED WORD FEAST FOR THE HUNGRY SOUL. Come on an adventure narrated with artistically woven words, capturing the deep things of the soul. Dive into four volumes of poetically narrated...
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